Good meal out

Had a lovely Thai meal out with our friends Mo and Pete at the Barton Arms http://www.oakhamales.com/bartonabout.asp.  Food was great and so was the company. My BRCA sister Lita and I tried to Skype each other but had problems and had to word message each other instead.
 Another of my BRCA sisters  went into hospital in Derby yesterday for her reconstruction and had surgery this morning to have her expanders put in. Her worderful husband Graham has been posting us updates on facebook and we are hoping to visit her in Stoke next week.
 Tomorrow we go to Solihull hospital for Gray's exercise class again.
  My wonderful husband Gray clared the junk from under the bed and I managed to retrieve all the photos thanks to Gray. Tried to scan them on to the pc but they don't seem to have worked. Will probably try again tomorrow.

Cpd day

Went to Grays heart rehabilitation lecture on risks of heart disease and life support which gave me 2/12 hours of continuous profesional development. Then we went to our favourite Italian restaurant and tomorrow to his exercise class and I will be able to go shopping on my own yipeee!
 I am feeling absolutely bursting with energy both physically and mentally and desperate to be around lots of people and party. We talked about arranging a party for my Birthday in October.

Great convo

Had a really enjoyable long chat with my cousins daughter Claire We get on like a house on fire and we have so much in common it's incredible , same bands and everything and she is an amazing pschic,I can't wait to meet her.I had an emotional morning for some reason don't know whether it was the BRCA or the cancer. Gray phoned my oncologist's secretary Lynn and she said yes the effects I've had were probably from the aromasin. Mo and Pete came round with some veg from their allotment. . my wig now has a hole in the crown so we will buy a new one tomorrow. Mo and Pete our best friends are coming round so we can go to town to buy a new wig and to go for a tipple at my favourite pub. Anyway getting late now so I am going to snuggle up to my husband in bed.

Feeling a little happier.

My wonderful husband Gray has been taking me out to cheer me up bless him and yesterday I work up and thought ooh I'm back at work in  weeks and that really cheered me up. Wierd I expect you're all feeling but I absolutely love my job.
 Tomorrow Gray is taking me to Warwick Castle http://www.warwick-castle.co.uk/.
  I spoke to my friend and work manager yesterday and she has invited us to go for a drink and listen to some live music together on Sunday which I'm really looking forward to.

CHAT WITH COUNSILLOR

Had a lovely chat with my genetic counsillor on the phone yesterday about how I felt and was in tears so he decided to suggest me going in to see him which I said yes as I'd love to meet him.

 The priest at the church in Killarney contacted me to say he couldn't find my grandmothers baptismal only Cherry. Her name was Sherry and he suggested a spelling mistake and I though of course Sherry would sound like Cherry with an Irish accent. It's important I trace her family as it's the only side I can't get back on so we assume the gene comes from her. My grandmother came to England with one of her sisters so they would be at risk to if my mum did have the gene.

 Both Gray and my counsillor is wondeing if there has been a mistake and my cousillor thinks I should be tested further in case I've got a BRCA 1 gene aswell from my dad's side as they have a strong family history of BRCA diseases. We shall see.

   Also my oncologist had asked me to phone him to get the report on my mums test and to inform him about the latest on Parp inhibitors as I had told him my counsillor had told me about them

Feeling very depressed.

Feel like I've wasted my time being gene tested as the reason for it was to save the lives of my BRCA positive cousins but I can't get in touch with any of them on my dads side or my maternal grandmothers si                                                                                                                                                                                          de. All the cousins on my mums side have thankfully come back negative

My friend Mo has been told the tumour in her lung is smaller than they thought it was ,it was a typing error!

 My sick pay has run out as I have been off sick for 9 months and statutory sick pay only lasts 28 weeks.

I phoned the Macmillan helpline today and they were very helpful. I'd had a look at the form on the net and it's means tested so I didn't think we would be able to get it but they told me we could under the special rules. I have been very worried about money as we have none coming in now apart from disability living allowance as Gray has been redundant.I will be phoning my oncologists secretary to get a form I need for it.                                                                                                                                         When my Dad died he left their house to my brother and me straight down the middle. I have asked him for our half of the money as we're desperate as I have many times before but he still refuses. I was very upset and in tears and he called me a bitch.       

 I phoned Breast Cancer Care today about the t-shirt I ordered and asked for my cousin but she doesn't work there any more so I looked her up on 192 and found a few with her name who live in her town. I phoned them but they weren't in so I left a message on their phones. One was in but she wasn't the right one.

  My oncologist wants a copy of my mum's mutation and the information on the parp inhibitors from him so I tried phoning him but he wasn't in.

 I had a phone call from St Mary's yesterday, he left a message on the phone for me to call him back about my grandmother. I phoned but he was conducting a funeral.